I wish I had better news but the short of it is, not very good.
I couldn't possibly recall all the medical terms and descriptions used, but in a nutshell it appears that our baby girl has hypoplastic left heart and an AV canal defect. The specialist said on a scale, this is very major and very serious.
We will be delivering in Seattle. And she will need immediate heart surgery. There's a lot of unknown still, as this is outside the realm of the perinatologist. We're waiting for a call back from the pediatric cardiologist to see if he can get us in today (which we're praying for), and if not, then the soonest he can.
Some updates and positive news. He believes that it is not a chromosomal abnormality. He can't rule it out for certain without an amniocentesis but he's fairly confident it's not. There is only a very little fluid around the heart and the fluid in the neck is not any worse and in his words, "appears to be resolving." That was a specific prayer request so thank you, Jesus, for that.
There is no fluid anywhere else, only the very little bit around the heart. The brain looks great and exactly how it should, as does everything else.
Here's where things get too medical-y and I can't possibly remember exactly how he explained this. I mentioned in my last post that the heart rate has been around the 115-120s, up from 60. Well, he explained that two parts of the heart are beating at different rates, one almost twice the rate of the other. One part of the heart is beating at 60 and the other at about 115, simultaneously. He explained that this is "nature's" way of kicking in as a lifesaver when one part of the heart fails. Again, I could totally be explaining this wrong; this is the gist of what I understood.
So when we've measured the heart the last few weeks, it was only partially accurate.
(Not sure if any of that makes sense.)
Also, because of the hypoplastic left heart, the heart is having to work very hard to pump blood to the rest of her body, which is causing her heart to enlarge. This is part of what makes this very serious.
So here's an updated prayer request list:
- Complete healing.
- That her heart would remain stable and able to be corrected with surgery.
- That her heart would not become any more enlarged.
- That the fluid around her heart would completely go away.
- That the Lord would sustain her life inside my belly and outside after birth.
Thank you. Thank you for praying. Thank you for caring. Thank you for holding us up on days like today when we feel very weak and very, very disheartened.
To leave on a happier note, we wanted to share her name with you. We chose this name months ago but then we decided we were having a boy and moved on to boy's names. We're thankful we get to use it after all.
So, without further ado, we proudly introduce our baby girl...
(The quality isn't very good in these pictures because they're pictures of pictures.)