February 08, 2013

Ultrasound Update and an Official Introduction to Baby Girl

I know many of you are waiting to hear how the ultrasound went today.

I wish I had better news but the short of it is, not very good.

I couldn't possibly recall all the medical terms and descriptions used, but in a nutshell it appears that our baby girl has hypoplastic left heart and an AV canal defect. The specialist said on a scale, this is very major and very serious.

We will be delivering in Seattle. And she will need immediate heart surgery. There's a lot of unknown still, as this is outside the realm of the perinatologist. We're waiting for a call back from the pediatric cardiologist to see if he can get us in today (which we're praying for), and if not, then the soonest he can.

Some updates and positive news. He believes that it is not a chromosomal abnormality. He can't rule it out for certain without an amniocentesis but he's fairly confident it's not. There is only a very little fluid around the heart and the fluid in the neck is not any worse and in his words, "appears to be resolving." That was a specific prayer request so thank you, Jesus, for that.

There is no fluid anywhere else, only the very little bit around the heart. The brain looks great and exactly how it should, as does everything else.

Here's where things get too medical-y and I can't possibly remember exactly how he explained this. I mentioned in my last post that the heart rate has been around the 115-120s, up from 60. Well, he explained that two parts of the heart are beating at different rates, one almost twice the rate of the other. One part of the heart is beating at 60 and the other at about 115, simultaneously. He explained that this is "nature's" way of kicking in as a lifesaver when one part of the heart fails. Again, I could totally be explaining this wrong; this is the gist of what I understood.

So when we've measured the heart the last few weeks, it was only partially accurate.

(Not sure if any of that makes sense.)

Also, because of the hypoplastic left heart, the heart is having to work very hard to pump blood to the rest of her body, which is causing her heart to enlarge. This is part of what makes this very serious.

So here's an updated prayer request list:

- Complete healing.

- That her heart would remain stable and able to be corrected with surgery.

- That her heart would not become any more enlarged.

- That the fluid around her heart would completely go away.

- That the Lord would sustain her life inside my belly and outside after birth.

Thank you. Thank you for praying. Thank you for caring. Thank you for holding us up on days like today when we feel very weak and very, very disheartened.

To leave on a happier note, we wanted to share her name with you. We chose this name months ago but then we decided we were having a boy and moved on to boy's names. We're thankful we get to use it after all.

So, without further ado, we proudly introduce our baby girl...

Grace Haven

(The quality isn't very good in these pictures because they're pictures of pictures.)





21 comments:

  1. Just had a good ol' fashioned cryin' prayer with the Father about you and your precious little one ~ we send our love and thoughts to you and yours. Please read Psalm 61:2....I will be keeping up with you posts.

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    1. Thank you so much. I'm looking that verse up now.

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  2. Her name is so beautiful! Sending lots of prayers for you guys.

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    1. Thanks, Meshele. Still waiting to "meet" your little guy. :)

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  3. I am praying for you and your sweet baby girl. Love, Krystina

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    1. Thank you, Krystina, we sure do appreciate it.

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  4. I love her name. It's beautiful! Still praying for you all.

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    1. Thank you, Jill. Looking back, I see how God gave us that name, never knowing it would be so incredibly meaningful a few short months later.

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  5. Oh sweet Grace. So excited to pray for her by name. Love you friend!

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  6. Oh sweet Grace. So excited to pray for her by name. Love you friend!

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  7. Oh sweet Grace. So excited to pray for her by name. Love you friend!

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    1. Yes, thank you for praying for her by name! Love you, sweet friend!

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  8. What a beautiful name!
    Prayers to you all,
    Sonia

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  9. Hi Sara,
    I am friends with Courtney and she sent me your blog, so that I could be praying for you and your precious baby. Just wanted you to know that another sister in Christ is praying for you in Texas.
    -Cheryl

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    1. Wow, Cheryl, thanks for taking the time to respond and thanks even more for praying, we so need it!

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    2. By the way, my husband's from Texas - Tyler!

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  10. Sara, Tristen and I have been praying every night for your little "chicka" (as I call my granddaughters). We were excited to hear that you're having a girl. I hadn't read your blog when I posted on FB. We will commit to continue praying, nightly for your little Grace Haven. I know you....you will never give up and on those days that it feels like it's too much to bear just remember how many family & friends will be standing in the gap for you. You are such an inspirational women of God.

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    1. Thank you, Polly Ann, that means so much to me. Sure hope I can see you in person sometime soon!

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