January 20, 2013

Our Baby Nugget and Congenital Heart Block

This post is difficult to write. Originally I wasn't going to write it but a couple of things changed my mind.

First, I know so many of you have celebrated with us and the anticipation of our little Nugget.

Second, our baby needs a miracle healing for life and we welcome all the prayers we can get.

We went in for a routine first appointment when I was 13 weeks. During the ultrasound all of us could hear that the baby had an irregular heartbeat. It was very hard to miss. Our doctor was not concerned and said that at such an early stage this can be very common for several reasons that resolve themselves over time.

To be on the safe side he scheduled us for another ultrasound two weeks later. At this ultrasound the heartbeat was still irregular and it was now visible on the screen. He still didn't seem very concerned and to be honest, we weren't either. From what I had read on the internet, only about 2% of these cases actually result in anything concerning.

Again, to be on the safe side he scheduled us with a perinatologist.

This past Friday, January 18th, at 16 weeks and 1 day, we had our appointment with the perinate. Honestly, when we went in, our only thought was excitement over getting to find out the gender of our baby. We truly didn't have a single thought beyond that. We just didn't consider that anything serious could be wrong. I had had some trepidation after the last appointment but had brushed it off, thinking it was just natural concern.

The tech spent quite a bit of time measuring the baby, the organs, all the things they do at this appointment. She asked if we wanted to know the gender, at which point we (I) caved and said yes. But our little Nugget wouldn't uncross his/her legs so we were never able to tell. And honestly, at this point I could care less what gender this baby is. We just want a healthy baby.

In hindsight, Matt and I now see that the tech was pretty sober and short during this process, but like Matt later said, we thought it was just her personality.

The doctor came in shortly after, went through some initial health history and past pregnancy questions. Our first clue that something was not right came when he asked the tech if she had gotten the HR. She responded that she had and it was 60 BPM. I looked at her in shock. Sixty? She nodded yes.



At this point the doctor began a lengthy explanation. I struggled to keep up with what he was saying. He was however very thorough and patient and we were very grateful for that. But the longer he talked, the worse it got.

Heart rate of 60.

Congenital heart block.

Fluid build up around heart and neck.

Evidence of heart failure.

Structural heart abnormalities.

It didn't stop. It just kept coming. The tears flowed the entire time.

He gave us the option of an amniocentesis but after verifying that it would do nothing to change the baby's condition, it would be purely for information's sake, we turned it down. We told him that no matter what, termination was not an option.

After this they left us alone for a few minutes. We could only hold each other and cry. We were shell-shocked.

According to the doctor, the prognosis is very grave. Our baby has a high chance of not making it to birth. If Baby makes it to birth, he (or she) will need heart surgery almost immediately. This means I would deliver in Seattle, home to one of the nation's best pediatric heart hospitals.

We need you to pray for Baby. We will not stop asking for a miracle.

We have been completely blown away at the love poured out on us. A dear friend immediately fasting and praying for us. So many others weeping with us and interceding for our little one. Our church family set aside the "normal" routine last night in order to surround us in prayer, anoint us with oil (James 5 talks about this), speak Biblical truth to us and over us and our little one. Our family and friends have cried with us and truly borne our burden with us (Romans 12).

We cannot say thank you enough. In spite of the grief, we feel a tremendous sense of peace. It's indescribable, just like Philippians 4 speaks of.

What we ask prayer for:

Complete miraculous healing.

The fluid around heart and neck to completely go away.

Increase heart rate.

To make it to a point where baby is viable for life outside of my womb.

Thank you again so much, we appreciate each of you.





17 comments:

  1. Praying and crying with you friend. I will be praying for miracles all day. Love you!

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    1. Angi, thank you so much. Sure wish I could pray with you in person!

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  2. Praying and crying with you friend. I will be praying for miracles all day. Love you!

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  3. Endless prayers Sara. Praying for you little baby nugget!

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    1. Thank you, Carly. I know you guys are familiar with the medical unknown.

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  4. Praying for you, I love you all so much, and pray the Lord will be ever so near to you during this time!

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    1. We love you too, Sarah, thank you so much.

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  5. Praying for you all, Sara. I'm one of Matt's classmates, but feel as if I know you from following your blog. I'll be asking my small group at church for prayer for your baby tonight. Believing that a miracle can and will happen!

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    1. Jackie, thank you so, so much for praying and for bringing it to your small group! We are so blown away by people's love and care!

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  6. Will be praying over this daily! Hugs to you...

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    1. Thank you, Marci, I know you guys will. It's been unreal how we have felt the prayers of everyone the last couple of days and especially today.

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  7. Sweet Sara & Matt, John and I are joining you in prayer and fasting for the Lord's supernatural strength and healing for your precious one... thank you so much for being so vulnerable in your post - i defiantly cried through part of it...not sure if you knew this, john and my first child was a very odd miscarriage. We were so grateful for all the prayers of family and prayers... please know that the McNutt family will be covered in Prayer across the Nation and beyond... we love you all and are praying for you!!!

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    1. Oh Jess, I didn't know you lost your first baby! I'm so sorry, sweet friend. Thank you for caring so much, you've always had such a compassionate heart. I love you, girl!

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  8. I'm sending so many prayers for you and baby Nugget. Lots of hugs!! <3

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    1. Thank you so much, Meshele. And I'll pray for you and your baby nugget coming any day!

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  9. Sara and Matt,
    I will be praying for your newest nugget, for you both, for your boys and for your extended families. We all know that there is NOT anything that is too big for our God and with God on your side nothing is impossible. I will be praying that God's will, will be done in your life and the life of your new baby and that He will bring you peace and strength as you GO THRU this season of life. I will also pray for continued good reports from the doctors. Keep the FAITH!!!!

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  10. Hey dear Sara & Matt, Thank you for sharing the news, and know that you are in our prayers.
    Please keep us posted.
    With love,
    Sonia & Evan

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